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which for abled people would be above a 10

Oh wow :( This is very, very scary. I imagine it is more or less constant... Was today an specially bad day? What is it like on good days? When did the pain start?

people complement me on how many projects i do [...] they don't really realise [...] if i don't have constant distractions i can't survive.

Indeed, your site is amazing!! I'll look further into it in the next days, I do have a lot to learn from it and it is very enjoyable.

Thank you for letting us know the other side of the coin, even if there is so little we can do to help you... We can hope to provide some distraction, I guess?

Take care :)

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~beefox wrote:

thanks, yeah last night was especially bad for some reason however my pain has been gradully increasing with time. i guess its kind of to be expected as the underlying issue is with the fact my body just isn't "built" right on a chemical level, so as i get older and as time progresses i get worse. interestingly it technically isn't a degenerative illness because if i did absolutely nothing, i would not get worse, however that has its own issues and is a technicality.

the pain itself started around 12 i think, with my knees, but it was very manageable back then. around 16 i started needing a cane and now i use a cane in the house and a wheelchair when doing bigger things like going out. on a good day i rate my pain around a 7 but that's still levels that would be extremly concerning for an abled body person, but for me its just what i am used to

i apreciate the thoughts c: